Will both of you Ministers be proud of what you have accomplished? Will your cabinet be proud? How many people do you plan to hurt? How much treatment to you plan to deny? How many lives to you plan to ruin? Is there a point where it is all worth it? Are tax cuts worth my son’s life? His future? Your “new era” means that I actually have to ask these questions. Your “new era” is nothing short of immoral. If you allow it to continue unchecked, so too are both of you. Rachel Notley

https://featbc.org/discussions-board/reply/2659/


Lou Arab

Member

Dear FEAT Members,

My wife wrote an excellent letter to Gordon Hogg and Christy Clark, with copies to all the MLAs and the media. I want to share it here. In another posting, I will post the unbelieveable response from one Liberal MLA.

Lou Arab (Ethan’s Dad)

—————-

I am the mother of a beautiful blonde three year old boy. I want you to imagine yourself , going through what I have gone through in the last two and a half years.

You wake up every morning and hug your six month old baby. You marvel at his beauty. You make plans for his future. You bask in his smile. You take your baby to a place with one or two other children the same age. You stand back and smile as they crawl around and over eachother, exploring, playing. He looks back at you with a smile, just to check that you’re still there. You’re so proud. A few months later, it’s his first birthday party. Your baby’s beauty has increased tenfold. You didn’t think it was possible. Two of the other babies there are walking. They laugh and look at eachother. A third one, not quite walking, declares “mama!” and crawls toward her mother. Your baby stares into space, lost in thought. The birthday cake arrives. Your baby desolves into frightened tears. The cake is taken away. You try to interest your baby in the other children. The tears increase. A bad day you think to yourself. You feel your throat tighten. Six months later. Still no words from your child. He’s just started to walk. You’ve been to see your family doctor. “Everyone develops at their own pace” you’re told. You demand an appointment with another doctor. An eyebrow is raised. You’re told to come back in another six months. A speech therapist tells you that your baby is “a little behind”. You go back to your doctor. You demand a referral, and then another. You are desperate. Finally after six months of telling you that “there’s nothing to worry about”, suddenly the collective opinion changes. You are told that you child is “probably autistic”. You’re forced to wait another six months to get the “formal” diagnosis. You need that so that you can get help for your child. You grieve. You cry. You don’t sleep. Your beautiful child continues on, unsuspecting, in his world. You cry some more…alot more. Then you “get busy”. Something must be done. You read everything you can find. You discover that something CAN be done. You hear that the new government promised treatment. The deputy premier, a new mother herself, personally made a public promise during the campaign. You thank God for your timing. You feel bad for those parents that came before you whose children were not able to get the treatment you’ve been promised. You wait. Two months, four months…the treatment gets put off again, and again. It will be coming soon you’re told. Then you are told that “a 30% cut will be made to the budget”. Tax breaks were more important. You look over at your beautiful child, just turned 3 years old. He looks up, he smiles. He returns to his odd little routine. He has no treatment.

Tax breaks are not more important. Anyone who says they are is immoral. They deserve to go through what we have gone through.

They probably won’t. Only 1 in 160 are autistic. The odds are on your side Christy. Do you deserve to enjoy the benefits of those odds? If it were just you, I would not be so sure. But your child has done nothing wrong. So your baby deserves to be healthy.

Will both of you Ministers be proud of what you have accomplished? Will your cabinet be proud? How many people do you plan to hurt? How much treatment to you plan to deny? How many lives to you plan to ruin? Is there a point where it is all worth it? Are tax cuts worth my son’s life? His future?

Your “new era” means that I actually have to ask these questions. Your “new era” is nothing short of immoral. If you allow it to continue unchecked, so too are both of you.

Rachel Notley

 

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